I love you. I am always here, and I mean it. ♥️ Vid chat if u want because you’re struggling with your paws 🐾 I couldn’t love you more, Baileybear. I couldn’t believe in someone more. you really are in a battle… What we see, and what we don’t. I am here and plan to always be, for u. (But would rather be *there to spend time with you and help you out, my privilege)
I’m so sorry you’re going through so much all at once. I get it. And sending you love and good juju has been part of my life since 2019. That’s when I first ran across your writing - just before my third cervical fusion. I also was a writer and journalist before my spine started crumbling - because of hypermobile-type Ehlers Danlos syndrome.
I wondered if you also had hEDS. And your columns spoke of CF, which had stolen my baby nephew - Shayne Patrick Fisher - in 1990.
As you are recovering from your latest fusion, I’m being treated for newly diagnosed CF - my first “tuneup” at 68.
I’m stricken by the common bone woes and pain and wonder if there’s some as-yet-undiscovered shared genetic cause. (My uncle was deaf, my mom nearly so).
But I’m more stricken by your courage and determination. Then and now.
I read all of your CF Foundation columns, then followed you to IG and now here. There are no coincidences.
Thanks for all you’ve taught me about so much I hadn’t known I’d need to know.
And know that I’m in your corner always, and feel blessed to have found you when I did.
I wish you continued healing and growth as your daughters keep growing up and away. (My grown sons are my heart).
And I hope you’ll continue shining your light into the world - with words, with the artistry of your soul decoded by your body, and with your heart, whether in a spotlight on a stage or some other mode you’ve yet to dream.
Bless you and keep your heart open so your light can illuminate the way for all who struggle with invisible foes.
I love you. I am always here, and I mean it. ♥️ Vid chat if u want because you’re struggling with your paws 🐾 I couldn’t love you more, Baileybear. I couldn’t believe in someone more. you really are in a battle… What we see, and what we don’t. I am here and plan to always be, for u. (But would rather be *there to spend time with you and help you out, my privilege)
I love this! She is very special, isn't she...🥰
Yes! One of a kind 😍
Ditto what Hil said! ☺️
Beautiful photos!! I am sorry that you are going through all of this! Hoping you will be “Going on a walk” very soon❤️❤️❤️
I’m so sorry you’re going through so much all at once. I get it. And sending you love and good juju has been part of my life since 2019. That’s when I first ran across your writing - just before my third cervical fusion. I also was a writer and journalist before my spine started crumbling - because of hypermobile-type Ehlers Danlos syndrome.
I wondered if you also had hEDS. And your columns spoke of CF, which had stolen my baby nephew - Shayne Patrick Fisher - in 1990.
As you are recovering from your latest fusion, I’m being treated for newly diagnosed CF - my first “tuneup” at 68.
I’m stricken by the common bone woes and pain and wonder if there’s some as-yet-undiscovered shared genetic cause. (My uncle was deaf, my mom nearly so).
But I’m more stricken by your courage and determination. Then and now.
I read all of your CF Foundation columns, then followed you to IG and now here. There are no coincidences.
Thanks for all you’ve taught me about so much I hadn’t known I’d need to know.
And know that I’m in your corner always, and feel blessed to have found you when I did.
I wish you continued healing and growth as your daughters keep growing up and away. (My grown sons are my heart).
And I hope you’ll continue shining your light into the world - with words, with the artistry of your soul decoded by your body, and with your heart, whether in a spotlight on a stage or some other mode you’ve yet to dream.
Bless you and keep your heart open so your light can illuminate the way for all who struggle with invisible foes.