Dear Bailey, sweet, beautiful, wonderful Bailey, your thoughts of loss echo in my mind and mirror my own. Over the years I've been good friends with over 20 cfer's, I now have less than half. Most of those that are left are doing well, primarily because of Trikafta and medical advances. But I will never fail to cherish the time I had with those I've lost. The thought of my life without you Bailey, I daresay scares the hell outta me. Your words fill my mind and my heart, pictures and videos of you send shivers through my soul. Your dance is the flow of water, angels dancing on clouds, passion filling me with feels. My prayers for you will never cease, my love for you will never diminish. Be blessed my precious friend, for you are loved by many. 🥰
Thank you for saying this 😭 it’s also VERY validating to why the topic of loss is so sensitive to many who are CFers or love CFers. You said it perfectly. Down to half. Miracle meds exist but they don’t work for everyone … so the advocacy for awareness has to keep going. We can’t give up ❤️ 💪🏼
Bailey I could never-ever get fatigued over one's grief. Grief is a powerful, yet mysterious thing. It strikes anyone ANYTIME and ANYWHERE! You were right in saying HI to beautiful Gema. That shows you SHE IS EVERYWHERE, including in your beautiful heart, as well as Kage's. I do often wonder how, and hope Kage and Follin have been doing OK with her passing. BIG HUGS beautiful. Love you ❤️
Dear Bailey, sweet, beautiful, wonderful Bailey, your thoughts of loss echo in my mind and mirror my own. Over the years I've been good friends with over 20 cfer's, I now have less than half. Most of those that are left are doing well, primarily because of Trikafta and medical advances. But I will never fail to cherish the time I had with those I've lost. The thought of my life without you Bailey, I daresay scares the hell outta me. Your words fill my mind and my heart, pictures and videos of you send shivers through my soul. Your dance is the flow of water, angels dancing on clouds, passion filling me with feels. My prayers for you will never cease, my love for you will never diminish. Be blessed my precious friend, for you are loved by many. 🥰
Thank you for saying this 😭 it’s also VERY validating to why the topic of loss is so sensitive to many who are CFers or love CFers. You said it perfectly. Down to half. Miracle meds exist but they don’t work for everyone … so the advocacy for awareness has to keep going. We can’t give up ❤️ 💪🏼
Hi! Thanks for saying this. Means a lot and important to read. Thanks again!
Bailey I could never-ever get fatigued over one's grief. Grief is a powerful, yet mysterious thing. It strikes anyone ANYTIME and ANYWHERE! You were right in saying HI to beautiful Gema. That shows you SHE IS EVERYWHERE, including in your beautiful heart, as well as Kage's. I do often wonder how, and hope Kage and Follin have been doing OK with her passing. BIG HUGS beautiful. Love you ❤️