“What helps the pain?”
She thumbs at the digital detective- a tablet with the same answers built within charts without charts within other charts - and wonders what to say.
“Every one of these options takes money,” she thinks to herself (herself means: out loud in the hospital lobby with her child).
“None of these are covered by insurance,” she explains to her teen, who’s avidly reading a page in her giant science book about X-rays, before watching the “ready-and-action” electromagnetic in person, first hand. (First hand should be an X-ray pun, but it isn’t.)
“Did you know the person who invented the X-ray essentially, accidentally, killed his wife from radiation by testing his experiment over and over on her, before it was refined?” the mother says to the child who looks like she did not want to know this fact.
“I guess it’s saved so many lives since though… But at what personal price?”
“Bed rest is the only answer on this form that doesn’t require out of pocket funds,” she adds, as the teen goes back to her science book, hoping the mother can let her read in peace. “Other than the meds, which I’m on all of. Or the injections which I’ve done too many to count and they’ve never once helped. My body hates steroids.”
The child keeps reading.
“But chiropractors, massage therapy… that stuff takes money to put to the test. Bed rest is the only thing that’s really free… but it comes at the cost of far too much else. For many, not working when they can’t afford not to work.”
She Googles the fact about the inventor of the X-ray and his wife and realizes it’s more of a myth than fact. Technicians had horrible radiation disease which dated to amputations and deaths back then, but the wife was merely a part of standing in as the famous hand behind a more famous man and his success… and now we don’t even know her name.
“What helps the pain?” It asks.
According to science, money. Risk. Nameless women in history, and weary teenagers in waiting rooms. But money. Always back to money.
“I’ll check bed rest,” I say out loud…
And then I do.
I write every weekday here and haven’t broken that promise since beginning this working memoir and magazine of sorts; I know your support is precious… time is fleeting… and none of the above should be taken for granted.
Oh yes. I often say, there is little to help the endless and various types of pain. And if someone is listening and have time to listen then I explain that I think there ARE things that potentially could help…. But it all costs money. It so often comes down to money. Does money buy happiness? No. But it sure helps!!
I totally understand you, and her, and both of your mental anguish dealing with the constant pain and having to weigh the literal cost of treatments against the possible benefits. I honestly feel bad for both you and your daughter. I know I shouldn't. I know I should be encouraging both of you (and that the burden isn't mine to bear), but it's the truth. Neither of you should have to be subjected to this torture of being shunned by the system and it's monetary requirements. I honestly hope that you can budget SOME money, and more importantly, the cottage to give one of the alternative treatments a chance to possibly enhance your quality of life. Honestly you really do deserve to be rid of the pain much quicker and more completely than simple bed rest will provide. I hope you're daughter will continue to find personal growth in realizing that everything good (medically and in life) comes with its own risks and benefits, and more importantly how to weigh the differences and be okay with accepting certain risks in able to enjoy the benefits. Addressing the hidden in plain sight elephant in the room. I hope you both can continue to grow in your acceptance that death happens, and sometimes earlier than one cares to even think about. I'm proud of both of you for continuing to fight for a quality life even though the struggle is massive. You both deserve immense praise for this. On that note I'm going to leave you with a quote I think it's perfectly appropriate for the two of you, and the situation posed by this post. "On your headstone there will be two dates all that matters is the line in the middle." I hope that quote makes sense to you, and gives you something positive to ponder.