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Oh yes. I often say, there is little to help the endless and various types of pain. And if someone is listening and have time to listen then I explain that I think there ARE things that potentially could help…. But it all costs money. It so often comes down to money. Does money buy happiness? No. But it sure helps!!

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I totally understand you, and her, and both of your mental anguish dealing with the constant pain and having to weigh the literal cost of treatments against the possible benefits. I honestly feel bad for both you and your daughter. I know I shouldn't. I know I should be encouraging both of you (and that the burden isn't mine to bear), but it's the truth. Neither of you should have to be subjected to this torture of being shunned by the system and it's monetary requirements. I honestly hope that you can budget SOME money, and more importantly, the cottage to give one of the alternative treatments a chance to possibly enhance your quality of life. Honestly you really do deserve to be rid of the pain much quicker and more completely than simple bed rest will provide. I hope you're daughter will continue to find personal growth in realizing that everything good (medically and in life) comes with its own risks and benefits, and more importantly how to weigh the differences and be okay with accepting certain risks in able to enjoy the benefits. Addressing the hidden in plain sight elephant in the room. I hope you both can continue to grow in your acceptance that death happens, and sometimes earlier than one cares to even think about. I'm proud of both of you for continuing to fight for a quality life even though the struggle is massive. You both deserve immense praise for this. On that note I'm going to leave you with a quote I think it's perfectly appropriate for the two of you, and the situation posed by this post. "On your headstone there will be two dates all that matters is the line in the middle." I hope that quote makes sense to you, and gives you something positive to ponder.

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I love your style of third person writing, Bailey Anne! And always the inclusion of someone close to you. They make me feel a part of your story, part of your experiences, part of your adventures, part of your life. I thank you for that. Deeply.

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