3 Comments

Iso agree. Any coping mechanism

is a good one (good not necessarily

healthy). Those coping mechanics

help us get through the daily grind

of chronically ill life. The challenge

you have yourself is not necessarily

unhealthy if done right. What you are doing is turning inside and becoming introspective. This allows you to analyse your body whilst at the same time blocking out most external stimulus. This is smart, but I do hope you convey to your carer the specific level of pain you're in, or a movement causes, by your words (which you're a master with). The carers need to know the exact level of pain to tailor your treatment plan, and look for anything out of the ordinary with recovery so it is imperative that you communicate

that even if you physically don't show it. I have a question. Do you not have insurance or MA? Either of those would pay for PT so you can recover more effectively and fully. It scares me that after such an intense and invasive surgery that you currently don't have access to PT. I also hate flm-without-consent culture also. If you're like or in a crowded public space, or with friends then that's okay it's a POV documentary of ones adventures (think vacations, parties, or similar), but in professional settings or emergencies (crashes, fires, and

the like) it's absolutely not okay. I'm

praying you find some way to get PT so you can recover fully, quickly, and get back to dancing sooner.

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"Any coping mechanism is a good one (good not necessarily healthy)" is the perfect summary of the complexity of why we have to fight our way through pain but why judgement from the outside can sometimes be so unfair. I find a lot of people will comment on someone's survival strategies even when they have no experience with surgeries or pain of that magnitude... and that's always baffled me. I read people's words to learn more about, or empathize. I definitely try to look into the lookin glass of others' lives to see what a different life, culture, experience is like etc... not to judge. You know?

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I know perfectly. I never look at others words or actions to judge, but rather to learn. I honestly think if a lot of normies were too be given our disabilities for a month or so they too would seek to learn rather than to judge. Normies have no idea the privilege they have by having a healthy body. The pain, the trauma, the gaslighting, the endless exhausting routines, the fear of missing out, the careful balancing of activity energy and symptoms they will never have to experience any of these, and they will never realise just how privileged being healthy is.

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