Sitemap - 2024 - Catching Breath’s Substack
We Probably Know There's Something Wrong
I Intentionally Raised My Girls Without Child Support
I Watched the Film “Judy” Recently
Hear Me Out: We Need Tragic People…
I Call This The Paris Hilton Blur Spot
To This Day, If I Get a Bad Scan...
Hot Take: Unconditional love IS conditional
I Have Hurt and Rejected My Partner
I’ll Be Honest: I Was Super Scared
I’m at the OB Where I Had My Daughters…
I Don’t Even Have Time For a Sense of Dread
I Stretch… and It Pops a Bone or Two
Love is Absolutely Nothing Like What We Are Told
You Can Be Flawed and Broken and Wounded and Lost
I Don’t Want to Talk About Faith Here
(Permission To Exist Sometimes?)
I Have Always Wanted to Adopt a Child
“What Does a Life Worth Living Look Like For You?”
Let’s Normalize ASL and Deafness in Beauty
Let's Sh*T On Instagram While On Substack
“That’s Why I Never Take My Phone in the Bathroom”
"You Shouldn't Have to Pretend It Doesn't Hurt."
Are You Still Paying Attention?
“Try Writing a Letter to the Person That You Lost”
“The Dark Feelings Are Not You..."
None of Us Want Our Bruises to Show
So Anyways… I’m Weeping in the Shower.
“I Have Never Treated a CF Patient Before Who Didn’t Have Anxiety.”
I Had Two Surgeries and Covid and I'm Lonely
In the Last Year, I’ve Had 6 Surgeries and 9 Hospital Stays
Today I Have Exceeded the Age of My Life Expectancy
I Had a New Surgery (Two Weeks After the Last)
"There was no such thing as safe anymore"
“Wake up!” I was still shouting
"I heard it without realizing I was hearing it"
“The Suicide Supremacists are everything that’s wrong with this planet”
“Can you imagine intentionally dying by touch?”
“Get her in the car!” I screamed
"I thought maybe they’d just go deaf"
"There is no evidence that wearing gloves makes any difference"
"My brother died not long after this..."
"Then we are all going to die"
It's Time For The Big Weird Surprise I've Been Taunting!
Living Honestly as a Sick Person IS Too Much
“What If I Collect the Results of Myself Using a Daily Cold Cream?"
“I Want You to Push This," My Doctor Said
I Was Performing With the Circus Around a Month Later
Here Is How We Should Change The 'Pain Number System' in Healthcare
I Read About the 7 Essence Technique
“Is It Better to Burn Out Fast Than to Fade Away?”
I Wish I Had More Texts From My Friends I’ve Lost
I Actually Think I Wouldn’t Be as Nice to Other Sick People
“I Thought I Was Going to Have to do CPR”
“I Hope They’re Managing Your Pain.”
Think About It: Why Wouldn’t That Be the Best Cream For Taking Down Inflammation?
“Things Exploding Inside of Me”
“You Were Right,” the Doctor Said
I Went to the ER a Couple of Weeks Ago
I Would Eat Every Last Evil Word if I Could, Like The OA
They Operated on Two Different Discs in My Neck
Living With Degenerative Spine-Type of Disease Isn’t Something I Ever Expected to Happen
I Found Out I Was Having 2 Surgeries In the Span of 2 Days
I Had Secret Surgery This Week
I’ll Never Be Kate Beckinsale Who Never Raises Her Eyebrows
...For Every Athlete With One Surgery As The Climactic Moment
I’m Intentionally Failing Right Now
If You've Ever Had a Sister.... Then You Need to Read This Today
The Thing About Marriage Is That... It’s Not Actually Sustainable
I Would Have Never Met the Person I Loved in Person Before He Died
"I Think I Know You," She Said...
I Started Talking About Lung Transplants Instead
How Do You Protect Yourself From Encountering Another Person With CF
Be Halsey or Be Lena Dunham...
You Recall a Doctor Asking You to Sign a Waiver for Medicine That Could Make Your Child Deaf
I’m Not One for Making Posts Like This...
I am Used to Barbaric Looking Vast Incisions
We Consider Disability “Beautiful” Briefly and Only When It Trends
Do You Know What the World Says to Sick People When We Are Sick?
“Please Be My Leg,” I Said to Him
“I Have to Tell You Something I Don’t Want to Tell You…"
‘Isn’t Staying Alive the Most Important Thing?’
I Have a Huge Announcement to Make
My Sickness Can't Be Someone's Clickbait
The World is Quick to Point the Finger at Women and Scream: “Vapid!”
At Night, I Apply a Mask of Noxzema to Damp Skin
Health is Wealth Unless You’re Wealthy (Then You Might Be Cured)
I Was Supposed to Have a Secret Surgery This Week
Survive, Report, Repeat. Survive, Report,Repeat.
I Obsess Over the Textures of Beauty Brands I Haven’t Tried and Can’t Afford
A Defibrillator Going Off is the Scariest Feeling That You Can Never Expect
“This Just Isn’t Sustainable For You”
Invite the Sick Person to Your Party, Even If You Think They Might Not Show Up
I Am a Very Very Very Very Bad “Follow”
I Don’t Normally Cry in Public Unless...
I Once Had a Surgery to Repair a Tear That Basically Was...
But You Can’t Hide a Body That’s Not Always Good at Being a Body
I Have This Sick Fantasy Where...
“What Helps the Pain?” It Asks
If I Can Never Lift My Leg Higher Than My Hip… Am I No Longer a Dancer?
My Sadness Had Never Even Met Sadness Before
"I Use It Religiously and Have Been For Over 40 Years."
Maybe You Too Recently Needed a Product Breakup
I Worry About Being Sedated Around Someone Who Isn’t Sworn to Love
A Day After Coming Home From Your Second Hospital Stay In a Month
Meet A Death Doula: "The 10 Question Toolbox"
I See Friends Who Commit Their Lives to Staying Alive
I Cloak Myself in Radiation and Watch Her Give
It’s 1 Million Times Scarier to Walk Right Into the Spaces Where You’ve Failed...
There Is a Reason That People With CF Used to Move Near the Beach
Surgeries Impact Who I am Outwardly a Lot
I Feel Less Deaf When I’m Dancing…. Not More So
“I’m Not an Inspiration! I Work Too Hard to Even Be Called Sick! I Am So Productive!"
Even Though I’m Missing So Many Organs, I Somehow Had the Miracle of Making Two Humans
I Decided to Show the End and Not Be a Liar For Once
I Wish There Were More Education On How to Help Deaf Patients Feel Safe
I Sneeze. I Shave My Leg. I Sit Weird.
"Why Did I Tell Her the Truth?
An Unfair Entry into Adolescence; A Childhood of Trauma
I Have Looked at Mobility (And Help) Through That Lens For Far Too Long
Where She Could Tell I Was Not Myself.
See My Suffering? Please Make It Matter.
“Don’t Apologize When Asking For Your Meds.”
I Wish We Replaced the Word “Weight” With “Strength” When Sharing Online
I’ve Been Suffering and Starving It Out Alone at Home For 7 Years
I Was Direct Admitted to the CF Floor
Can You Be “Beautiful” and Have Scars All Over Your Body?
“I’ll Moisturize My Face About Six Times a Day"
Shorter. Less Disgusting. But Truths Can Be Disgusting
We Often Think That Others Will Fatigue of Our Grief
We Don’t See This Online or In Movies or In Novels
Most Who Argue Otherwise Don’t Know What a SNAP Card Looks Like
“How Many Products Does This Person Have?”
Hell, We Can Prolapse Entire Damn Organs From Coughing…
"Tiny Triumvirate Squares, Synced in Sepia"
“You’re Both in a Storm" (I Am Your Mother)
Where Was the Beauty Campaign With a Ballerina With Feeding Tubes
“Lack of Sleep Makes 40-Something Year Old Men Die Faster”
The Diminutive Dots of Laparoscopic Have Always Felt Like Nothing to Me
Alone In Her Absence After She Passed
“Oh Yeah. Okay. Cool. Good Experiment” (Beauty)
Next Goal Wins, All of Us Strangers, and Past Lives (The Shame-Free Cinema Club)
“I’ll Interpret For You,” My Youngest Said
“Sitting is Worse Than Dancing,” I Said
The Horror Movie of Our Morning Was Hard To Shake The Rest of the Day
It’s Leaky Feeding Tubes And Tendus
Deaf Girl's Soundtrack To Life: Sigur Ros, Dead Man's Bones, Paul Simon, Frightened Rabbit
If You’re a Sick Person Who Is Scared to Post...
...Treated As If PAIN Isn’t Pain In Every Single Body
I Get Very Quiet When I Am In Pain
The Next Generation Who Needs to See Disability as Dimensional
“Should I Just Retire?!” I Said to My Best Friend
I Wish Every Patient in the World Could Hear These Words
I Haven’t Slept in Almost Two Decades
“You’re Always Blue,” Tiny Dancer Said.
You Can’t Be “Well” at Being Unwell
"Communication is 55% Nonverbal, 38% Vocal, and 7% Words Only"
A Monster of Self-Centeredness Whose Artistic Pretensions Now Seem Grotesque
“It’s Going to Take a Lot More Than You Think to Sedate Me”
I Wish I Had Gone to the Hospital the Second This All Started
I Got Pancreatitis For Our Opening Weekend of Shows
One Year From Now, We Will Throw an Adoption Party
Bodies Are a Privilege (Even When Hit By Buses)
“The Difference In People’s Pain Tolerance Is Wild,” She Said
Not Things Like: “Airways Become Colonized With Bacteria”